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Fondazione Telethon
Fondazione Telethon is a major Italian charity focused on rare genetic diseases. Founded in 1990, its mission is to advance biomedical research towards the cure of genetic diseases with the ultimate goal of making new therapies available to patients in need. Fondazione Telethon has 3.186 projects for an overall amount of 790 million Euro , both within its own research institutes (Tigem and SR-Tiget) and through grants to Italian academic institutions, with the purpose of progressing research from the lab bench to the patient bedside and has secured critical competences for such purpose, including translational research management, regulatory, quality and CMC expertise, clinical operation and business development. Since 2023 Fondazione Telethon is also holder of the marketing authorization in Europe for Strimvelis and in Europe and United States for Waskyra, both ex vivo gene therapy for ultrarare immunodeficiencies.
Massimizzi le sue possibilità di successo assicurandosi che il suo CV e le sue competenze corrispondano ai requisiti di questa posizione.
RESPONSABILITIES
- Draft, review,
negotiate and manage Confidential Disclosure Agreements (CDAs);
- Draft, review, negotiate and manage Research Agreements involving intellectual property considerations, including Material Transfer Agreements (MTAs), Data Transfer Agreements (DTAs), Service Agreements, and Consultancy Agreements;
- Review and ensure the proper management of intellectual property rights and ownership clauses related to research results within contracts managed by other internal departments that have IP and/or Business Development implications;
- Coordinate internally with Research & Development, Legal Affairs, Finance, Grant Office, and Tigem’s and SR-Tiget’s teams, including researchers and administrative staff;
- Manage relationships and negotiations with external counterparties, including academic institutions, research organizations, companies, and service providers.
- Act as the primary point of c
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